Pediatric Quality of Life
This curated set of instruments measure pediatric quality of life in generic as well as condition-specific contexts (e.g., pain, asthma). Each is described by condition/disease context, child age range, languages, and evidence of psychometric testing (e.g., validity and reliability). They can be compared by checking the “compare” button.
Showing 1–9 of 82 results
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‘Vecu et Sante Perque des Adolescents’ (VSP-A)
Generic measure Measure domains: Psychological well-being; energy/vitality; friends; parents; leisure; school Summary of development: TBD
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16D
Generic measure Measure Domains: Mobility, vision, hearing, breathing, sleeping, eating, speech, elimination, usual activities (school/hobbies), friends, physical appearance, mental function, discomfort and symptoms, depression, stress, vitality. Summary of development: 15D was developed for adults. The 15D was revised for adolescents ages 12-15 that resulted in the 16D (Apajasalo 1996a). This revision was guided by specialists’ and adolescents’ input (both school children and children will health conditions). There was then a second revision for children ages 8-11, resulting in the 17D (Apajasalo 1996b). This revision was guided by specialists’ and parent’s input. The overall score is based on valuations using visual analog scales. The 16D scoring is based on values obtained from school children age 12-15. The 17D scoring is based on values obtained from parents of children age 8-11. It is important to note that health utility scales that are made in the econometric tradition, such as the 16D and 17D, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful. There are no published tests of the English versions of these questionnaires as they were originally developed in Finnish.
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Aboriginal Children’s Health and Well-being Measure (ACHWM)
Generic measure Measure domains: Spiritual, Emotional, Physical, Mental Summary of development: The Aboriginal Children's Health and Well-Being Measure (ACHWM) was developed to enable Aboriginal health leaders to gather information on the health of children at a local community level. The measure aims to be culturally appropriate model of health and wellbeing for Aboriginal communities in Canada (Young, 2013). Its purpose is to provide Indigenous communities or organizations with an overview of the health and well-being status of the children and youth in their communities. Focus groups were conducted to explore the concepts of health and well-being using storytelling, photovoice, and many opportunities to engage in activities. Through innovative methods, children and youth identified 206 concepts representing the 4 quadrants of the Medicine Wheel: emotional, spiritual, physical, and mental. These concepts were refocused, in collaboration with the community, to create a new 60-item measure of health and well-being that was primarily positive in focus. The questionnaire was finalized after expert panels, advisory committee meetings, and community consultation.
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Adolescent AQOL-6D
Generic measure Measure domains: Independent living (physical ability), social and family relationships, mental health, coping, pain, senses (vision, hearing, communication) Summary of development: Moodie and colleagues (2010) conducted focus groups of adolescents ages 12-18 in four Pacific countries (Australia, New Zeland, Figi, Tonga) to adapt the adult version of AQOL-6D (Richardson 2004). It is important to note that health utility scales that are made in the econometric tradition, such as the AQOL-6D, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful.
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Adolescent Health Utility Measure (AHUM)
Generic measure Measure domains: self-care, pain, mobility (limitations walking around), perceptions of strenuous activities, self-image, and health perceptions. Summary of development: The goal of Beusterien & colleagues (2012) was to develop a multi-attribute measure, the adolescent health utility measure (AHUM) that focuses on key impacts of treatment for chronic conditions among older children and adolescents. The measure was based on the CHQ, EQ5D, and SF6D, as well as parent and child interviews. It is important to note that health utility scales that are made in the econometric tradition, such as the AHUM, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful.
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Brief Multidimensional Students’ Life Satisfaction Scale (BMSLSS)
Generic measure Measure domains: Family, Friends, School, Living Environment, Self Summary of development: TBD
*Multiple versions: Multidimensional Life Satisfaction Scale for children (MSLSS), Brief multidimensional students’ life satisfaction scale (BMSLSS), Multidimensional Students’ Life Satisfaction Scale—adolescent version (MSLSS-A) -
Child Health Utility 9D (CHU9D)
Generic measure Measure domains: Emotional function (worried, sad, annoyed), Physical function (tired, pain, sleep, daily routine), Schoolwork/homework/learning function, Social function (able to join in) Summary of development: The CHU9D was developed as a preference-based measure for HRQoL in children and adolescents. An unpublished paper written by Stevens in 2008 describes the conceptual framework and the process of developing the measurement instrument. Stevens (2009) reviewed previous pediatric HRQoL measures and then conducted several rounds of qualitative interviews with 7–11-year-old children to develop areas of concern, ranking of concerns, and test descriptive wording. This work found 11 dimensions of HRQoL and early questionnaires had 19 questions. Further work reduced the number of domains to 9 and the number of questions to 9. There are several tests of different scoring options. The measure website recommends using Stevens 2012 scoring using the standard gamble with adults in the UK. The website notes there is also a scoring algorithm developed using best/worst scaling with Australian adolescents (Ratcliffe 2011). It is important to note that health utility scales that are made in the econometric tradition, such as the CHU9D, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful.
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Child’s Health Self-concept Scale (CHSCS)
Generic measure Measure domains: Psychosocial; physical health; healthiness; values; energy (in 1984 article) And revised set of domains: Satisfaction with home life/family relations; emotional health; general physical health; peer relationships/friendships; sleeping patterns Summary of development: Hester (1984) surveyed children aged 6-13 using open ended questions to develop 12 categories of health. 58 items were initially created. After expert and child review as well as pilot testing using factor analyses, there were 45 items in 5 domains.
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Children’s Health Ratings Scale (CHRS)
Generic measure Measure domains: Current health quality, resistance to illness, health outlook, current illness state, current comparative health Summary of development: Maylath (1990) modified the RAND General Health Ratings Index to create the CHRS. The original 22 items were reduced to 17 items. There was mention of a parent form, which was not found except for a mention in a scoping review. There were several mentions of the measure in reviews, but we found very few articles describing or using this measure.