Family Well Being
This curated set of family-level outcome measures are available to researchers to assess family well-being across different dimensions. Each is described by construct measured, disease/condition context, number of items, availability of short forms and subscales, languages, and other relevant attributes. All are available for public use at no or minimal cost, some require permission (see “How to access”). They can be compared by checking the “compare” button.
Showing 1–9 of 23 results
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Autism Family Experience Questionnaire (AFEQ)
Developed to capture parent perspective of family experience when have child with autism. Developed through parent-generated input, specifically designed to assess impact of parent-child intervention. Measures family's experience across 4 domains: experience of being a parent; family life; child development, understanding, and social relationships; child symptoms (feelings and behavior). Validated and tested for responsiveness to change.
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Beach Center Family Quality of Life Survey
Developed to capture overall family quality of life for use in research and policy/programmatic contexts. Measures how family functions as a social unit and issues specific to families with children with disabilities. Includes 5 domains (subscales): family interaction, parenting, emotional well-being, physical/material well-being, and disability-related support. Development based on qualitative data from parents of children with disabilities; psychometrically tested. Testing to date only on families with children < 12 years.
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Diabetes Family Impact Scale (DFIS)
Designed to measure impact of childhood diabetes (type 1) on family life across dimensions of finances, work, well-being, and school (school impact is how disease affects child's school experience; others are effects on family). Developed for use in clinical settings and for program evaluation. Developed with input from providers and tested among families. Psychometrically tested.
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Family Adaptability and Cohesion Evaluation Scale (FACES) IV
Developed to assess family functioning based on a theoretical model ("Circumplex Model") that describes "balanced" levels of 3 dimensions that define a well-functioning family: cohesion, flexibility, and communication. Cohesion=emotional bonding among members; flexibility=ability to adapt with change; communication=ability to alter cohesion and flexibility in response to developmental or situational demands. Substantial psychometric testing across years and translations. Current version is FACES IV; a 24-item Short Form is used as well--previous versions are considered outdated. Used in research and therapeutic settings.
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Family APGAR
Developed for use in clinical setting to evaluate family functioning vis a vis patient care, patient context, or for family intervention. Assessed from perspective of each member (as many as available) across 5 dimensions: adaptation, partnership, growth, affection, resolve. Single question each (5 items total), scored separately and combined for total score. Validated subsequent to original publication.
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Family Assessment Measure Version III (FAM III)
Developed to measure family functioning via strengths and weaknesses across multiple domains and from multiple perspectives. Intended for use as clinical assessment, outcomes, or research. Includes three scales: (1) general scale, measuring overall family functioning, containing 9 subscales; (2) dyadic relationship scale, measuring functioning among any dyad within family; and (3) self-rating scale, measuring an individual's perception of one's functioning within family. Scales can be used together or separately. Short forms of all 3 available.
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Family Harmony Scale
Developed to measure Chinese culture's concept of family harmony, consisting of aspects of communication, conflict resolution, forbearance, identity, and quality time. Qualitative research with families in Hong Kong utilized in development and psychometric testing. Translated into English for testing against other family well-being measures. Completed by one individual in family (over 10 years of age). 5-item short form captures each of the main aspects.
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Family Health Scale
Developed to measure holistic concept of health for family unit, for use at population level and in clinical settings. Clinical cut-offs for poor, moderate, and excellent "family health", validated against individual risk of moderate or severe clinical depression. Long and short versions--long has 4 subscales, 32 items: family social and emotional health processes (connection, communication, etc. within family context), family healthy lifestyle (healthy behaviors, choices), family health resources (internal and external health resources), family external social supports (social capital, etc.). Short form is one score, 10 items. Psychometrically tested.
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Family Impact subscale of PedsQL
A subscale of the PedsQL designed to measure functioning in families with a child with a chronic health conditios. Eight questions measure impact on family's daily activities and relationships. Parent provides responses. Available in multiple languages; initial psychometric testing conducted.