Pediatric Quality of Life
Showing 73–81 of 127 results
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Patient-Reported Outcomes Measurement Information System—Pediatric Item Banks Computerized Adaptive Test (PROMIS PIB CAT)
Generic measure Measure domains: Mobility, upper extremity, peer relationships, depressive symptoms, anxiety, anger, pain interference, fatigue Summary of development: TBD
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Pediatric Asthma Control Tool (PACT)
Asthma-specific Measure domains: Symptoms at Best, Frequency of Asthma Flares Summary of development: Zorc et al. (2006) designed a brief measurement for children to assess asthma symptoms to facilitate better control. The authors did a literature review, consulted with experts, and held focus groups with parents and providers of children with asthma to create the initial 14-item measure. National Asthma Education and Prevention Program (NAEPP) guidelines were considered when drafting questions for the PACT. Other asthma assessments have recall periods of a week or month, but this parent-completed measure has a 3-month recall time frame. This questionnaire does not appear to be used outside of the Zorc 2006 article.
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Pediatric Asthma Health Outcome Measure (PAHOM)
Asthma-specific Measure domains: Symptoms, Emotion, Activity Summary of development: The Pediatric Asthma Health Outcome Measure (PAHOM) is a Quality-Adjusted Life Years (QALYs) measure. The developers performed a literature review to identify existing asthma measures. The previous measures were examined to select important health attributes that would be used in the new measure. Pediatric asthma specialists and a psychologist provided feedback, and three common health attributes were selected for the PAHOM: Symptoms, Activity, and Emotion. Parents of children with asthma completed Visual Analog Scales (VAS) and Standard Gamble (SG) experiments to determine weighting of the attributes (Chiou 2005).
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Pediatric Asthma Quality of Life Questionnaire (PAQLQ)
Asthma-specific Measure domains: Symptoms, Activity Limitation, Emotional Function Summary of development: The creators of the Pediatric Asthma Quality of Life Questionnaire (PAQLQ) took common symptoms experienced by people with asthma and asked 100 children with different degrees of asthma severity about which ones they have experienced. The children were asked to rate each symptom experienced on a scale of 1-5 with a higher number indicating a higher symptom burden. From this, the developers took the most common symptoms reported and used them to build the PAQLQ. The instrument contained 3 domains (activity limitation, symptoms, and emotional function) with 23 items. The measure was tested with children with asthma and their parents at asthma clinics and responses were recorded at baseline, 1 week later, 5 weeks later, and 9 weeks later. The instrument was responsive to change and able to discriminate different health states (Juniper 1996).
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Pediatric Electronic Quality of Life Instrument for Children with Asthma (The Pelican)
Asthma-specific Measure domains: Symptoms, Triggers, Activity Limitation, Mental and Emotional Impact, and Impact on Social Life Summary of development: This pediatric asthma HRQoL instrument was developed in the Netherlands and is designed for children to answer electronically. The researchers to hold focus groups with asthmatic children to determine what aspects of HRQoL are important to them and analyze the common themes they observed. As a result of the focus group interviews, the researchers determined the most important issues were limitations of activities, symptoms, impact on social life, limitations due to environmental triggers, and mental and emotional impacts of the disease (van der Bemt 2010). The questionnaire is presented as a web-based computer game with questions that are read aloud. The measure was developed in Dutch and the only psychometric testing we found was also in Dutch, so not included here.
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Pediatric Measure Yourself Medical Outcomes Profile
Generic-Specific Modules
Measure domains: Symptom 1; symptom 2; activity impairment; general well-being (child specifies symptoms and activity impairment affecting them most)
Summary of development: The adult measure, Measure Yourself Medical Outcomes Profile, has been used in an adult population since its development in 1996 (Patterson). The measure does not appear to be used in a pediatric population. The single publication about the PMYMOP is a PhD thesis paper about development without any psychometric testing (Ishaque 2018).
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Pediatric Quality of Life (PedsQL) Asthma Module
Asthma-specific Measure domains: Asthma Symptoms, Treatment Problems, Worry, and Communication Summary of development: The PedsQL focuses on age-specific groups of children and self-report. The PedsQL can be used for healthy and chronically ill children – there is a generic module (see the generic PedsQL summary) and there are disease-specific modules for asthma, arthritis, cancer, cardiac disease, and diabetes. (Varni 2001,Varni 2004).
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Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)
Generic measure Measure domains: Health, mood/feelings, school/learning, helping at home, getting along with friends, getting along with family, play/free time, getting things done, love/affection, getting/buying things, place you live at, paying attention, energy level, feelings about yourself, global QoL Summary of development: TBD
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Pediatric Quality of Life Inventory (PedsQL)
Generic measure Measure domains: Functioning: physical; emotional; social; school Infant (<2 years) Version Domains: Functioning: physical; emotional; social; cognitive; physical symptoms Summary of development: TBD