Pediatric Quality of Life
This curated set of instruments measure pediatric quality of life in generic as well as condition-specific contexts (e.g., pain, asthma). Each is described by condition/disease context, child age range, languages, and evidence of psychometric testing (e.g., validity and reliability). They can be compared by checking the “compare” button.
Showing 64–72 of 98 results
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Patient-Reported Outcomes Measurement Information System- Early Childhood (PROMIS-EC)
Generic measure Measure domains: (A) Global health; (B) Mental health: anger, anxiety, depressive symptoms, positive affect, engagement—curiosity, engagement—persistence, self-control—adaptability, self-control—self-regulation; (C) Social relationships; (D) Physical health: physical activity, sleep health Summary of development: TBD
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Patient-Reported Outcomes Measurement Information System- Pediatric Global Health Measure (PROMIS PGH-7)
Generic measure Measure domains: General health, quality of life, physical health, mental health, sad, fun with friends, parents listen to ideas Summary of development: TBD
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Patient-Reported Outcomes Measurement Information System- Pediatric Global Health Measure Informant Only (PROMIS PGH-7)
Generic measure Measure domains: General health, quality of life, physical health, mental health, sad, fun with friends, parents listen to ideas Summary of development: TBD
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Patient-Reported Outcomes Measurement Information System- Pediatric Item Banks Short Form (PROMIS PIB SF)
Generic measure Measure domains: Mobility, upper extremity, peer relationships, depressive symptoms, anxiety, anger, pain interference, fatigue Summary of development: TBD
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Patient-Reported Outcomes Measurement Information System—Pediatric Item Banks (PROMIS PIB)
Generic measure Measure domains: Mobility, upper extremity, peer relationships, depressive symptoms, anxiety, anger, pain interference, fatigue Summary of development: TBD
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Patient-Reported Outcomes Measurement Information System—Pediatric Item Banks Computerized Adaptive Test (PROMIS PIB CAT)
Generic measure Measure domains: Mobility, upper extremity, peer relationships, depressive symptoms, anxiety, anger, pain interference, fatigue Summary of development: TBD
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Pediatric Asthma Control Tool (PACT)
Asthma-specific Measure domains: Symptoms at Best, Frequency of Asthma Flares Summary of development: Zorc et al. (2006) designed a brief measurement for children to assess asthma symptoms to facilitate better control. The authors did a literature review, consulted with experts, and held focus groups with parents and providers of children with asthma to create the initial 14-item measure. National Asthma Education and Prevention Program (NAEPP) guidelines were considered when drafting questions for the PACT. Other asthma assessments have recall periods of a week or month, but this parent-completed measure has a 3-month recall time frame. This questionnaire does not appear to be used outside of the Zorc 2006 article.
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Pediatric Asthma Health Outcome Measure (PAHOM)
Asthma-specific Measure domains: Symptoms, Emotion, Activity Summary of development: The Pediatric Asthma Health Outcome Measure (PAHOM) is a Quality-Adjusted Life Years (QALYs) measure. The developers performed a literature review to identify existing asthma measures. The previous measures were examined to select important health attributes that would be used in the new measure. Pediatric asthma specialists and a psychologist provided feedback, and three common health attributes were selected for the PAHOM: Symptoms, Activity, and Emotion. Parents of children with asthma completed Visual Analog Scales (VAS) and Standard Gamble (SG) experiments to determine weighting of the attributes (Chiou 2005).
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Pediatric Asthma Quality of Life Questionnaire (PAQLQ)
Asthma-specific Measure domains: Symptoms, Activity Limitation, Emotional Function Summary of development: The creators of the Pediatric Asthma Quality of Life Questionnaire (PAQLQ) took common symptoms experienced by people with asthma and asked 100 children with different degrees of asthma severity about which ones they have experienced. The children were asked to rate each symptom experienced on a scale of 1-5 with a higher number indicating a higher symptom burden. From this, the developers took the most common symptoms reported and used them to build the PAQLQ. The instrument contained 3 domains (activity limitation, symptoms, and emotional function) with 23 items. The measure was tested with children with asthma and their parents at asthma clinics and responses were recorded at baseline, 1 week later, 5 weeks later, and 9 weeks later. The instrument was responsive to change and able to discriminate different health states (Juniper 1996).