Pediatric Quality of Life
This curated set of instruments measure pediatric quality of life in generic as well as condition-specific contexts (e.g., pain, asthma). Each is described by condition/disease context, child age range, languages, and evidence of psychometric testing (e.g., validity and reliability). They can be compared by checking the “compare” button.
Showing 55–63 of 98 results
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KIDSCREEN-52
Generic Measure domains: Physical wellbeing; psychological wellbeing; moods and emotions; self-perception; autonomy; parent relations and home life; social support and peers; school environment; social acceptance; financial resources Summary of development: The KIDSCREEN project was a joint project by 13 countries in Europe (Austria, Czech Republic, France, Germany, Greece, Hungary, Ireland, Poland, Spain, Sweden, Switzerland, the Netherlands, and the United Kingdom) in the early 2000’s. The goal of the project was to create a generic HRQOL item for children and adolescents. Focus groups were used to determine children’s and their parents’ opinions about HRQOL and what they considered as the most important aspects. The most common health attributes mentioned in the interviews were rated by experts in childhood HRQOL, then children and parents ranked these attributes in order of importance. The dimensions identified were: Physical well-being; Psychological well-being; Moods and emotions; Self-perception; Autonomy; Parental relations and home life; Social support and peers; School environment; Social acceptance; and Financial Resources (Ravens-Sieberer 2001). A pilot version of a questionnaire was given to children and parents who then reported on ease of use, readability of questions, and scales for responses (Detmar 2006). The first version of the KIDSCREEN had 52 questions, and subsequent versions were reduced to 27 and 10 questions. Item reduction was done using exploratory factor analysis, Mokken scale analysis, Rasch partial credit modeling, DIF (Differential Item Functioning) (using Zumbo’s logistic regression method), MAP analyses, and confirmatory factor analysis (Robitail 2007). The Kids-CAT (Computer Adaptive Test) is a version developed in collaboration with the US (United States) PROMIS (Patient Reported Outcomes Measurement Information System) Pediatric Project. (Ravens-Sieberer 2014). Here we report testing in any study that included English language partipants. Much of the KIDSCREEN psychometric testing has been done in other languages, particularly German and Spanish. There is close cooperation with the DISABKIDS project, which is also funded by the European Union. In close cooperation with the sister project KIDSCREEN, the DISABKIDS project developed disease-specific questionnaires to record the health-related quality of life of children and adolescents aged 4 to 7 and 8 to 16 years with a chronic disease and/or disability such as bronchial asthma, infantile cerebral palsy, diabetes mellitus, epilepsy, juvenile arthritis, cystic fibrosis, neurodermatitis and obesity. Four versions: KIDSCREEN-52, KIDSCREEN-27, KIDSCREEN-10, Kids-CAT (not available to public)
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Life Activities Questionnaire for Childhood Asthma (LAQCA)
Asthma-specific Measure domains: Physical, Work, Outdoor, Emotions and Emotional Behavior, Home Care, Eating and Drinking, and Miscellaneous. Summary of development: Creer and colleagues previously developed an adult asthma measure, upon which this measure is based (Creer et al 1992). The authors of this childhood asthma instrument considered daily activities of children that could be restricted by their asthma. Previously, children with asthma had symptoms reported by parents and the focus was on activity restriction, like missing school. This measure was developed by asking 92 children ages 5-17 open-ended questions about daily activities affected by their asthma. Parents helped younger children complete the questions. Common themes of activities affected by asthma included the following, which are domains of the LAQCA: physical, work, outdoor, emotions and emotional behavior, home care, eating and drinking, and miscellaneous. The measure was later adapted for three age groups: 4-7, 8-11, and 12-16 and had 19 less questions for 52 items. We could not find information on the various iterations of the LAQCA. Aside from the 1992 and 1993 Creer articles, no further studies or articles of the measure were identified with a search. Another study considered using the LAQCA but decided against it because of the length of the instrument and concerns about the appropriateness of work-related questions and daily activities like “chopping wood” and “scrubbing floors” for children (Kintner 2008).
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Multidimensional Child Well-Being Scale (MCWBS)
Generic measure Measure domains: Physical, psychological, social, educational Summary of development: TBD
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Multidimensional Life Satisfaction Scale for Children (MSLSS)
Generic measure Measure domains: Family, Friends, School, Living Environment, Self Summary of development: TBD
*Multiple versions: Multidimensional Life Satisfaction Scale for children (MSLSS), Brief multidimensional students’ life satisfaction scale (BMSLSS), Multidimensional Students’ Life Satisfaction Scale—adolescent version (MSLSS-A) -
Multidimensional Students’ Life Satisfaction Scale Adolescent Version (MSLSS-A)
Generic measure Measure domains: Family, same sex friends, school, living environment, self, opposite sex relationship Summary of development: TBD
*Multiple versions: Multidimensional Life Satisfaction Scale for children (MSLSS), Brief multidimensional students’ life satisfaction scale (BMSLSS), Multidimensional Students’ Life Satisfaction Scale—adolescent version (MSLSS-A) -
Nordic Quality of Life Questionnaire for children (Nordic QoLQ)
Generic measure Measure domains: External conditions, interpersonal conditions, psychological conditions Summary of development: TBD
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Nordic Quality of Life Questionnaire for Children Informant Only (Nordic QoLQ)
Generic measure Measure domains: External conditions, interpersonal conditions, psychological conditions Summary of development: TBD
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OK.ado Adolescent Quality of Life
Generic measure Measure domains: Leisure and relationships, school, family, self-esteem Summary of development: TBD
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Paediatric Measure Yourself Medical Outcomes Profile (P-MYMOP)
Generic measure Measure domains: Symptom 1, symptom 2, activity impairment, general well-being (child specifies symptoms and activity impairment affecting them most) Summary of development: TBD