Pediatric Quality of Life
This curated set of instruments measure pediatric quality of life in generic as well as condition-specific contexts (e.g., pain, asthma). Each is described by condition/disease context, child age range, languages, and evidence of psychometric testing (e.g., validity and reliability). They can be compared by checking the “compare” button.
Showing 28–36 of 82 results
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Health Dialogue Questionnaire (HDQ-16)
Generic Measure domains: Physical, Mental, Social Summary of development: Holmström and colleagues (2012) distributed the Health Dialogue Questionnaire (HDQ) to six-year- old children and their parents in Sweden between 2006-2009. The questionnaires focus on promoting positive health. After two pilot studies using the original questionnaires, the HDQ was narrowed to 15 questions. The HDQ domain concepts are presented in an age-appropriate way and given to children in schools in Sweden at ages 6, 10, 13, and 16, to track growth and development over time. The HDQ is administered by school nurses, who provide questionnaires and verbal information to parents and students, and who are also responsible for providing students with feedback. This measure was originally developed and tested in Swedish. We did not find any psychometric testing of an English version. Four versions: ages 6, 10, 13, and 16 (HDQ-6, HDQ-10, HDQ-13, HDQ-16)
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Health Dialogue Questionnaire (HDQ-6)
Generic Measure domains: Physical, Mental, Social Summary of development: Holmström and colleagues (2012) distributed the Health Dialogue Questionnaire (HDQ) to six-year- old children and their parents in Sweden between 2006-2009. The questionnaires focus on promoting positive health. After two pilot studies using the original questionnaires, the HDQ was narrowed to 15 questions. The HDQ domain concepts are presented in an age-appropriate way and given to children in schools in Sweden at ages 6, 10, 13, and 16, to track growth and development over time. The HDQ is administered by school nurses, who provide questionnaires and verbal information to parents and students, and who are also responsible for providing students with feedback. This measure was originally developed and tested in Swedish. We did not find any psychometric testing of an English version. Four versions: ages 6, 10, 13, and 16 (HDQ-6, HDQ-10, HDQ-13, HDQ-16)
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Healthy Pathways CRS (Child Report Scales)
Generic measure Measure domains: Child Report- comfort (physical comfort, emotional comfort, negative stress reactions), energy (physical activity, balanced nutrition, vitality), resilience (peer connectedness, family connectedness, teacher connectedness, active coping), risk avoidance (aggression/bullying/physically hurting, peer hostility/bully victim/physically bullied and hurt), subjective well-being (life satisfaction, self-worth, body image), and achievement (academic performance, school engagement) Summary of development: The Healthy Pathways scales were derived from the Child Health and Illness Profile (CHIP-CE, CHIP-AE, CHIP-CE/PRF) to make it more psychometrically sound, reliable and valid, and more age appropriate for ages 10-12, when kids are transitioning from childhood to adolescence. Two versions: Healthy Pathways CRS (Child report scales) and Healthy Pathways PRS (parent report scales)
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Healthy Pathways PRS (Parent Report Scales)
Generic measure Measure domains: Parent Report- comfort (physical comfort, emotional comfort), energy (physical activity, balanced nutrition, vitality), resilience (family connectedness, neighborhood cohesion), risk avoidance (aggression/bullying/physically hurting), well-being (life satisfaction, self-worth, body image) and achievement (academic performance) Summary of development: The Healthy Pathways scales were derived from the Child Health and Illness Profile (CHIP-CE, CHIP-AE, CHIP-CE/PRF) to make it more psychometrically sound, reliable and valid, and more age appropriate for ages 10-12, when kids are transitioning from childhood to adolescence. Two versions: Healthy Pathways CRS (Child report scales) and Healthy Pathways PRS (parent report scales)
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How Are You (HAY)
Generic and Asthma-specific components Measure domains: Generic domains: physical activities, cognitive tasks, social activities, general physical complaints, and positive emotions; Asthma-specific domains: asthma symptoms, emotions related to asthma, self-concept, self-management; Other disease-specific versions include those for epilepsy, juvenile rheumatoid diseases, and diabetes mell Summary of development: The HAY- How Are You? by Bruil (1999) is designed for 8–12-year-olds and contains both a generic and a condition-specific component. The items originate from interviews with children and their parents and from experts. There are child and parent versions of this measure. To rate their feelings, children are provided visual analogs of faces with happy or sad expressions from which to choose. The parent questionnaire (HAY-P) asks the parents to rate their perception of the frequency and quality of daily activities performed by their child and to rate their own feelings related to the problems that occur for their child. This measure was originally developed and tested in Dutch. We did not find any psychometric testing of the English version.
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HUI2- Health Utilities Index
Generic Measure domains: Sensation; ambulation/mobility; emotion; cognition; self-care; pain; fertility Summary of development: The HUI2 and HUI3 are based on the HUI1, which was used as a health-utility measure for low-birthweight babies in the NICU. Originally developed for children with cancer, the HUI2 is a generic measure utilizing preference-based health states to evaluate quality-adjusted life years (QALYs) of clinical interventions (Torrance 1996). Based on literature searches, previous measures, and interviews with parents, the health domains deemed most desirable were: (1) sensory and communication ability, (2) happiness, (3) self-care, (4) pain or discomfort, (5) learning and school ability, and (6) physical activity ability (Cadman 1986). The seventh attribute of fertility was added based on long-term outcomes for children with cancer. Parents of children with cancer and parents of a general population of children were interviewed using Standard Gamble and VAS health state rating (Torrance 1996). When answering, they were asked to imagine multiple health states from age 10 to age 70 to determine the most desirable conditions. When revising the HUI2 to make the HUI3, the domain of Self-care was replaced by Dexterity which reflects inability to take care of oneself if incapacitated; Sensation was replaced by three domains: Vision, Hearing, and Speech, and the domain of Fertility was eliminated. HUI questionnaires are available in many languages, in self- and proxy- assessment versions, in self- and interviewer-administered formats, and with various recall assessment periods. (Horsman 2003). It is important to note that health utility scales that are made in the econometric tradition, such as the HUI Mark 2 and Mark 3, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful. Four versions: HUI2, HUI2 Informant, HUI3, HUI3 Informant
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HUI2- Health Utilities Index-Informant version
Generic Measure domains: Sensation; ambulation/mobility; emotion; cognition; self-care; pain; fertility Summary of development: The HUI2 and HUI3 are based on the HUI1, which was used as a health-utility measure for low-birthweight babies in the NICU. Originally developed for children with cancer, the HUI2 is a generic measure utilizing preference-based health states to evaluate quality-adjusted life years (QALYs) of clinical interventions (Torrance 1996). Based on literature searches, previous measures, and interviews with parents, the health domains deemed most desirable were: (1) sensory and communication ability, (2) happiness, (3) self-care, (4) pain or discomfort, (5) learning and school ability, and (6) physical activity ability (Cadman 1986). The seventh attribute of fertility was added based on long-term outcomes for children with cancer. Parents of children with cancer and parents of a general population of children were interviewed using Standard Gamble and VAS health state rating (Torrance 1996). When answering, they were asked to imagine multiple health states from age 10 to age 70 to determine the most desirable conditions. When revising the HUI2 to make the HUI3, the domain of Self-care was replaced by Dexterity which reflects inability to take care of oneself if incapacitated; Sensation was replaced by three domains: Vision, Hearing, and Speech, and the domain of Fertility was eliminated. HUI questionnaires are available in many languages, in self- and proxy- assessment versions, in self- and interviewer-administered formats, and with various recall assessment periods. (Horsman 2003). It is important to note that health utility scales that are made in the econometric tradition, such as the HUI Mark 2 and Mark 3, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful. Four versions: HUI2, HUI2 Informant, HUI3, HUI3 Informant
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HUI3- Health Utilities Index
Generic Measure domains: Vision; hearing; speech; ambulation/mobility; pain; dexterity; emotion; cognition Summary of development: The HUI2 and HUI3 are based on the HUI1, which was used as a health-utility measure for low-birthweight babies in the NICU. Originally developed for children with cancer, the HUI2 is a generic measure utilizing preference-based health states to evaluate quality-adjusted life years (QALYs) of clinical interventions (Torrance 1996). Based on literature searches, previous measures, and interviews with parents, the health domains deemed most desirable were: (1) sensory and communication ability, (2) happiness, (3) self-care, (4) pain or discomfort, (5) learning and school ability, and (6) physical activity ability (Cadman 1986). The seventh attribute of fertility was added based on long-term outcomes for children with cancer. Parents of children with cancer and parents of a general population of children were interviewed using Standard Gamble and VAS health state rating (Torrance 1996). When answering, they were asked to imagine multiple health states from age 10 to age 70 to determine the most desirable conditions. When revising the HUI2 to make the HUI3, the domain of Self-care was replaced by Dexterity which reflects inability to take care of oneself if incapacitated; Sensation was replaced by three domains: Vision, Hearing, and Speech, and the domain of Fertility was eliminated. HUI questionnaires are available in many languages, in self- and proxy- assessment versions, in self- and interviewer-administered formats, and with various recall assessment periods. (Horsman 2003). It is important to note that health utility scales that are made in the econometric tradition, such as the HUI Mark 2 and Mark 3, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful. Four versions: HUI2, HUI2 Informant, HUI3, HUI3 Informant
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HUI3- Health Utilities Index-Informant
Generic Measure domains: Vision; hearing; speech; ambulation/mobility; pain; dexterity; emotion; cognition Summary of development: The HUI2 and HUI3 are based on the HUI1, which was used as a health-utility measure for low-birthweight babies in the NICU. Originally developed for children with cancer, the HUI2 is a generic measure utilizing preference-based health states to evaluate quality-adjusted life years (QALYs) of clinical interventions (Torrance 1996). Based on literature searches, previous measures, and interviews with parents, the health domains deemed most desirable were: (1) sensory and communication ability, (2) happiness, (3) self-care, (4) pain or discomfort, (5) learning and school ability, and (6) physical activity ability (Cadman 1986). The seventh attribute of fertility was added based on long-term outcomes for children with cancer. Parents of children with cancer and parents of a general population of children were interviewed using Standard Gamble and VAS health state rating (Torrance 1996). When answering, they were asked to imagine multiple health states from age 10 to age 70 to determine the most desirable conditions. When revising the HUI2 to make the HUI3, the domain of Self-care was replaced by Dexterity which reflects inability to take care of oneself if incapacitated; Sensation was replaced by three domains: Vision, Hearing, and Speech, and the domain of Fertility was eliminated. HUI questionnaires are available in many languages, in self- and proxy- assessment versions, in self- and interviewer-administered formats, and with various recall assessment periods. (Horsman 2003). It is important to note that health utility scales that are made in the econometric tradition, such as the HUI Mark 2 and Mark 3, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful. Four versions: HUI2, HUI2 Informant, HUI3, HUI3 Informant