Pediatric Quality of Life

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    TACQOL (TNO-AZL Child Quality of Life): Netherlands Organization for Applied Scientific Research Academic Medical Centre- Children’s Quality of Life Questionnaire, Informant Only: Parent-Form

    Generic and Disease Specific Modules

    Measure domains: Pain and symptoms; motor functioning; autonomy; cognitive functioning; social functioning; global positive emotional functioning; global negative emotional functioning

    Summary of development:

    The TACQOL-Child form and Parent form ask about children’s health status and their emotional response to health-related issues.  There are two related questionnaires called the TNO-AZL Preschool Child Quality of Life Questionnaire and the TNO-AZL Questionnaire for Adult’s Health-Related Quality of Life.  These measures were developed in the Netherlands in Dutch.  They have been translated into 9 languages.  All psychometric evaluations of the measures that we found were on the Dutch version.

     

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    TACQOL (TNO-AZL Child Quality of Life): Netherlands Organization for Applied Scientific Research Academic Medical Centre- Children’s Quality of Life Questionnaire, Parent-Form, Child-Form, Parent Form + Child Form

    Generic and Disease Specific Modules

    Measure domains: Pain and symptoms; motor functioning; autonomy; cognitive functioning; social functioning; global positive emotional functioning; global negative emotional functioning

    Summary of development:

    The TACQOL-Child form and Parent form ask about children’s health status and their emotional response to health-related issues.  There are two related questionnaires called the TNO-AZL Preschool Child Quality of Life Questionnaire and the TNO-AZL Questionnaire for Adult’s Health-Related Quality of Life.  These measures were developed in the Netherlands in Dutch.  They have been translated into 9 languages.  All psychometric evaluations of the measures that we found were on the Dutch version.

     

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    TANDI- Toddler and Infant Quality of Life. Updated/renamed as the EuroQol Toddler and Infant Populations (EQ-TIPS)

    Generic-Specific Modules

    Measure domains: Physical functioning; emotional functioning; role functioning; cognitive functioning; communication functioning

    Summary of development:

    The EuroQol Toddler and Infant Populations (EQ-TIPS) (formerly the TANDI) is an experimental measure based on the EQ-5D-Y proxy.  The instrument was developed for children aged zero to three years and includes six dimensions of health which are used to make a single health utility score.  It is important to note that health utility scales that are made in the econometric tradition, such as the EQ-5D, do not necessarily need psychometric testing such as internal consistency or structural validity.  For these measures, other types of validity such as known groups validity and convergent validity may be useful.

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    TAPQOL: TNO-AZL questionnaire for Preschool Children’s Health-Related Quality of Life

    Generic-Specific Modules

    Measure domains: Sleeping; appetite; lung problems; stomach problems; skin problems; motor functioning; problem behavior; social functioning; communication; positive mood; anxiety; liveliness

    Summary of development:

    The TNO-AZL- Preschool Children Quality of Life (TAPQOL) questionnaire was designed to measure parent's perceptions of health-related quality of life (HRQoL) in preschool children. The initial items were based on literature, psychological and clinical experience. The feasibility of this preliminary version of the TAPQOL questionnaire was evaluated in a group of parents of 1-5-year-old children. Several items were deleted or rephrased after this feasibility pilot. The number of items was reduced from 99 to 43 items in the final TAPQOL questionnaire (Fekkes 2000).

    The original questionnaire was developed in Dutch and there is only one study we found testing the English version of the questionnaire.  There are several studies of the Dutch version not included here.

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    TedQL

    Generic-Specific Modules

    Measure domains: Physical competence; peer acceptance; maternal acceptance; psychological functioning; cognitive function

    Summary of development: TedQL is an interviewer administered questionnaire to children age 3 to 8. Each item has four response options per concept. It uses two teddy bears to illustrate a concept.  One teddy bear would represent the positive side (i.e. on either the big circle or the end point on the linear scale) of the statement (e.g. `Iggy/Ziggy is good at running’). The other would represent the negative side of the statement (e.g. `Iggy/Ziggy is not good at running’). The children were asked to point to which bear they were most like. The children were then probed for whether they were really like this or just a little bit like this.  A later study (Clemens 2007) tested different response formats for the same questions.

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    TNO-AZL Child Quality of Life Questionnaire- Asthma (TACQOL- Asthma)

    Asthma-specific Measure domains:  Complaints, Situations, Emotions, Medication, and Treatment Summary of development:  The TACQOL-Asthma instrument is designed as an additional module to the generic TACQOL measure.  The asthma module was developed in Dutch and all psychometric testing we found was on Dutch samples, so they are not included in this summary.

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    TNO-AZL Questionnaire for Preschool Children’s Health-Related Quality of Life (TAPQOL)

    Generic measure Measure domains: Sleeping, appetite, lung problems, stomach problems, skin problems, motor functioning, problem behaviour, social functioning, communication, positive mood, anxiety, liveliness Summary of development: TBD

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    TNO-AZL Questionnaires for Children’s Health-Related Quality of Life (TACQOL)

    Generic measure Measure domains: Pain and symptoms, motor functioning, autonomy, cognitive functioning, social functioning, global positive emotional functioning, global negative emotional functioning Summary of development: TBD

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    TNO-AZL Questionnaires for Children’s Health-Related Quality of Life Informant Only (TACQOL)

    Generic measure Measure domains: Pain and symptoms, motor functioning, autonomy, cognitive functioning, social functioning, global positive emotional functioning, global negative emotional functioning Summary of development: TBD

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