Pediatric Quality of Life
Showing 91–99 of 127 results
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QLSI-C: Quality of Life Systemic Inventory for Children ‘‘Inventaire Syste´mique de Qualite´ de vie pour Enfants’’ (ISQV-E)
Generic-Specific Modules
Measure domains: Physical; emotional; cognitive; social; family functioning
Summary of development:
Etienne et al. highlight that the measure includes 20 life domains: sleep, food, pain, health, clothes, physical appearance, bedroom, relations with grandparents, relations with mother, relations with father, Relations with siblings, relations with friends, “opinion of people around me have about me,” school, school results, sports activities, extracurricular activities, autonomy, obedience to authority, and tolerance of frustration (2011)
These domains cover the child’s physical, emotional, cognitive, social, and family functioning. The questionnaire is divided in three sections:
Section 1: This section of the questionnaire has a Visual Analog Scale (VAS), which is “dial” with color gradation from pale yellow (best possible situation) to red (worst possible situation). Graphic faces are shown on the dial representing the different emotional states (from happy faces to sad faces). The child rotates the dial once in the context of each of the 20 life domains to indicate his/her actual state (“How happy are you now?”) and another time to indicate his/her desired state (“Where should you be situated to be satisfied?”). A gap score (−100 to +100) is then computed between the actual and desired states in relation to the 20 life domains.
Section 2: This section has measures designed to capture the perception of progress or hindrance regarding movement from actual to desired state in the context of the 20 life domains. The child indicates whether he/she thinks that, in the last few days, his/her actual situation has improved (“Getting better and better”) or worsened (“Getting worse and worse”) compared to his/her desired state. The scale used to capture these responses is a speed dial using four pictures: a walker, a cyclist, a car, and a plane.
Section 3: This section is designed to capture the perceived importance of the 20 life domains. The child indicates, on a 7-point importance rating scale, how important each domain is to him/her. These scores are then transformed into ranking scores signaling the level of priority the child places on the various life domains. It is unclear from the literature if this measure was developed/tested in English, French, or both.
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QoL-C (Quality of Life Scale for Children)
Generic-Specific Modules
Measure domains: Moving; looking after myself; doing usual activities; having pain; feeling worried, sad, or unhappy; global health, VAS (Visual Analog Scale)
Summary of development: This measure is based on the EQ5D. The measure uses a single item for five domains and uses simplified language, such as “moving around” instead of “mobility.” Relevant pictures of children are used alongside each question and written examples to help comprehension. QoL-C uses three faces (happy, neutral, and sad) as response options providing a visual anchor to the options “no problems”, “some problems”, and “a lot of problems. The five questions come together to produce a total QoL score of five to 15, with lower scores implying better QoL. The QoL-C uses a health meter, which asks children to rate their general health from zero to ten, with emoticons presented alongside to indicate “worst” health (sad emoticon), “ok” health (neutral emoticon), and “best” health (happy emoticon) (Thompson, 2014).
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QOLPAV: Quality of Life Profile- Adolescent Version
Generic-Specific Modules
Measure domains: Being (physical, psychological, spiritual); belonging (physical, social, community); becoming (practical, leisure, growth)
Summary of development:
The Quality-of-Life Profile– Adolescents' Version was developed in 1995 in a joint project involving the Centre for Health Promotion and the School of Nursing, Laurentian University, Sudbury, Ontario. Quality of life areas were identified through direct dialogue with adolescents. The instrument was developed with 54 items about satisfaction with aspects of life and an additional 9 items for control and opportunities. (Raphael 1996)
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QOLQA – Quality of Life Questionnaire for Adolescents – Japan and China
Generic-Specific Modules
Measure domains:
Japan and China Version: Physical; psychological; independence; social relationship; environment
Summary of development:
The work to develop quality of life questionnaire for adolescents (QOLQA) built from the Quality-of-Life project of the World Health Organization (WHO) that resulted in the WHOQOL-100. Item were reviewed and revised for adolescents with some items removed and developed for this specific measure. The 70 resulting items were tested in Chinese and Japanese QOLQA and divided into five domains: Physical, psychological, independence, social relationship, and environment.
We found no evidence of an English version of this questionnaire with any psychometric testing of English responses.
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QOLQA – Quality of Life Questionnaire for Adolescents – Taiwan
Generic-Specific Modules
Measure domains:
Taiwan Version: Family; residential environment; personal competence; social relationships; physical appearance; psychological wellbeing; pain
Summary of development:
The work to develop quality of life questionnaire for adolescents (QOLQA) built from the Quality-of-Life project of the World Health Organization (WHO) that resulted in the WHOQOL-100. Item were reviewed and revised for adolescents with some items removed and developed for this specific measure. The 70 resulting items were tested in Chinese and Japanese QOLQA and divided into five domains: Physical, psychological, independence, social relationship, and environment.
For the Taiwanese version of QOLQA, more items were added to address learning and school performance.
We found no evidence of an English version of this questionnaire with any psychometric testing of English responses.
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QUALIN (Qualité de vie du Nourrisson et du Jeune Enfant= Quality of Life Questionnaire for Infants and Toddlers)
Generic-Specific Modules
Measure domains: Psychomotor development; family environment; psychopathological; sociability
Summary of development:
The QUALIN questionnaire is specifically designed to assess the quality of life in infants and toddlers from three months to three years of age. It is a 34- item, proxy-reported scale, designed for pre or early schoolaged children, and validated on 705 children aged 3 months to 3 years. The French version has been translated into English, Italian, and Spanish. All psychometric testing we found has been on the French version of the questionnaire.
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Quality of Life Measure for Children aged 3-8 years (TedQL)
Generic measure Measure domains: Physical competence, peer acceptance, maternal acceptance, psychological functioning, cognitive functioning Summary of development: TBD
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Quality of Life Profile: Adolescent Version (QOLPAV)
Generic measure Measure domains: Being (physical, psychological, spiritual), belonging (physical, social, community), becoming (practical, leisure, growth) Summary of development: TBD
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Quality of Life Questionnaire for Adolescents (QOLQA)
Generic measure Measure domains: Physical, psychological, independence, social relationship, environment Summary of development: TBD