Instrument Repository
Showing 28–36 of 150 results
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EQ-5D-Y Proxy Version 1 (Proxy Opinion of Child HRQoL) EQ-5D-Y Proxy Version 2 (Proxy Opinion of Child HRQoL as child would report)
Generic measure Measure domains: 5 Dimensions: mobility, self-care, usual activity, pain/discomfort, and anxiety/depression, plus a Visual Analog Score (VAS) of overall health on a scale of 0-100. Summary of development: The EuroQol Research Foundation is responsible for the development of the adult measure, the EQ-5D. The EQ-5D measure is widely used to measure adult HRQoL, and the EQ-5D-Y was developed from the adult measure. The version for youth was adapted by reviewing literature on previous measures, the assistance of pediatric specialists, and qualitative interviews. The EQ-5D-Y consists of 2 pages: the EQ-5D (EuroQoL 5 dimension) descriptive system and the EQ visual analogue scale (EQ VAS). EQ-5D-Y is designed for self-completion by children and adolescents aged 8-15 years. Proxy versions, for completion by a caregiver or someone who knows the person well, are also available. In Version 1, proxies are asked to evaluate the child’s health state according to their own opinion; in Version 2, proxies are asked to evaluate their child’s health according to what they believe the child’s own opinion would be. The EQ-5D-Y-3L and the EQ-5D-Y-5L have the same dimensions and questions, but the 3L version has 3 levels of responses (no problems; some problems; a lot of problems); the 5L version has 5 levels of responses (no problems, slight problems, moderate problems, severe problems, unable to/extreme problems) designed to be more sensitive to health states. The 5L version was developed to reduce the ceiling effects of the 3L measure (Kreimeier 2019). It is important to note that health utility scales that are made in the econometric tradition, such as the EQ5D, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful. The EQ-5D-Y is available and evaluated in many languages; here we only include studies with English speaking participants. Three versions: EQ-5D-Y-3L (3 levels), EQ-5D-Y-5L (5 levels), EQ-5D-Y Proxy Version 1 (Proxy Opinion of Child HRQoL) and EQ-5D-Y Proxy Version 2 (Proxy Opinion of Child HRQoL as child would report)
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EQ-5D-Y-3L (EuroQoL 5-Dimensional Questionnaire for Youth, 3 levels)
Generic measure Measure domains: 5 Dimensions: mobility, self-care, usual activity, pain/discomfort, and anxiety/depression, plus a Visual Analog Score (VAS) of overall health on a scale of 0-100. Summary of development: The EuroQol Research Foundation is responsible for the development of the adult measure, the EQ-5D. The EQ-5D measure is widely used to measure adult HRQoL, and the EQ-5D-Y was developed from the adult measure. The version for youth was adapted by reviewing literature on previous measures, the assistance of pediatric specialists, and qualitative interviews. The EQ-5D-Y consists of 2 pages: the EQ-5D (EuroQoL 5 dimension) descriptive system and the EQ visual analogue scale (EQ VAS). EQ-5D-Y is designed for self-completion by children and adolescents aged 8-15 years. Proxy versions, for completion by a caregiver or someone who knows the person well, are also available. In Version 1, proxies are asked to evaluate the child’s health state according to their own opinion; in Version 2, proxies are asked to evaluate their child’s health according to what they believe the child’s own opinion would be. The EQ-5D-Y-3L and the EQ-5D-Y-5L have the same dimensions and questions, but the 3L version has 3 levels of responses (no problems; some problems; a lot of problems); the 5L version has 5 levels of responses (no problems, slight problems, moderate problems, severe problems, unable to/extreme problems) designed to be more sensitive to health states. The 5L version was developed to reduce the ceiling effects of the 3L measure (Kreimeier 2019). It is important to note that health utility scales that are made in the econometric tradition, such as the EQ5D, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful. The EQ-5D-Y is available and evaluated in many languages; here we only include studies with English speaking participants. Three versions: EQ-5D-Y-3L (3 levels), EQ-5D-Y-5L (5 levels), EQ-5D-Y Proxy Version 1 (Proxy Opinion of Child HRQoL) and EQ-5D-Y Proxy Version 2 (Proxy Opinion of Child HRQoL as child would report)
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EQ-5D-Y-5L (EuroQoL 5-Dimensional Questionnaire for Youth, 5 levels)
Generic measure Measure domains: 5 Dimensions: mobility, self-care, usual activity, pain/discomfort, and anxiety/depression, plus a Visual Analog Score (VAS) of overall health on a scale of 0-100. Summary of development: The EuroQol Research Foundation is responsible for the development of the adult measure, the EQ-5D. The EQ-5D measure is widely used to measure adult HRQoL, and the EQ-5D-Y was developed from the adult measure. The version for youth was adapted by reviewing literature on previous measures, the assistance of pediatric specialists, and qualitative interviews. The EQ-5D-Y consists of 2 pages: the EQ-5D (EuroQoL 5 dimension) descriptive system and the EQ visual analogue scale (EQ VAS). EQ-5D-Y is designed for self-completion by children and adolescents aged 8-15 years. Proxy versions, for completion by a caregiver or someone who knows the person well, are also available. In Version 1, proxies are asked to evaluate the child’s health state according to their own opinion; in Version 2, proxies are asked to evaluate their child’s health according to what they believe the child’s own opinion would be. The EQ-5D-Y-3L and the EQ-5D-Y-5L have the same dimensions and questions, but the 3L version has 3 levels of responses (no problems; some problems; a lot of problems); the 5L version has 5 levels of responses (no problems, slight problems, moderate problems, severe problems, unable to/extreme problems) designed to be more sensitive to health states. The 5L version was developed to reduce the ceiling effects of the 3L measure (Kreimeier 2019). It is important to note that health utility scales that are made in the econometric tradition, such as the EQ5D, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful. The EQ-5D-Y is available and evaluated in many languages; here we only include studies with English speaking participants. Three versions: EQ-5D-Y-3L (3 levels), EQ-5D-Y-5L (5 levels), EQ-5D-Y Proxy Version 1 (Proxy Opinion of Child HRQoL) and EQ-5D-Y Proxy Version 2 (Proxy Opinion of Child HRQoL as child would report)
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Exeter Quality of Life Measure (ExQol, or EHQOL or Exeter health related quality of life)
Generic measure Measure domains: Symptoms (sleep, aches, food allergies, sickness), social well-being, school achievements, physical activity, worry, and family relationships Summary of development: Eiser and colleagues (1999) conducted a study with the goal of developing a generic, self-reported HRQoL instrument for children ages 6-12. Eiser hypothesized that poor QoL is because of differences between a person’s ideal self (“how I would like to be”) versus their actual self (“this is like me”). Eiser et al. note that development of this measure is conceptually based on the Discrepancy Theory, which attempts to explain the individual’s ability to achieve daily goals, to capture the gap between expectations and experience in domains that may be compromised by illness. Originally 16 questions, the final version was narrowed down to 12 questions (Eiser 2000). An interviewer presents children with 12 pictures of possible scenarios on a tablet; for example, a child doing PE or a child attending a birthday party, along with a statement like “Joe is good at PE,” or “Tom can’t eat the same foods as other kids at a birthday party because he will get ill.” The children are asked to rate each scenario twice – the first time as how much the child in the picture is “like me” or how often the picture depicts a child who is “how I would like to be.” This measure is not mentioned in any other articles other than the two Eiser articles, except for systematic reviews that reference Eiser 2000.
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Family Adaptability and Cohesion Evaluation Scale (FACES) IV
Developed to assess family functioning based on a theoretical model ("Circumplex Model") that describes "balanced" levels of 3 dimensions that define a well-functioning family: cohesion, flexibility, and communication. Cohesion=emotional bonding among members; flexibility=ability to adapt with change; communication=ability to alter cohesion and flexibility in response to developmental or situational demands. Substantial psychometric testing across years and translations. Current version is FACES IV; a 24-item Short Form is used as well--previous versions are considered outdated. Used in research and therapeutic settings.
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Family APGAR
Developed for use in clinical setting to evaluate family functioning vis a vis patient care, patient context, or for family intervention. Assessed from perspective of each member (as many as available) across 5 dimensions: adaptation, partnership, growth, affection, resolve. Single question each (5 items total), scored separately and combined for total score. Validated subsequent to original publication.
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Family Assessment Measure Version III (FAM III)
Developed to measure family functioning via strengths and weaknesses across multiple domains and from multiple perspectives. Intended for use as clinical assessment, outcomes, or research. Includes three scales: (1) general scale, measuring overall family functioning, containing 9 subscales; (2) dyadic relationship scale, measuring functioning among any dyad within family; and (3) self-rating scale, measuring an individual's perception of one's functioning within family. Scales can be used together or separately. Short forms of all 3 available.
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Family Harmony Scale
Developed to measure Chinese culture's concept of family harmony, consisting of aspects of communication, conflict resolution, forbearance, identity, and quality time. Qualitative research with families in Hong Kong utilized in development and psychometric testing. Translated into English for testing against other family well-being measures. Completed by one individual in family (over 10 years of age). 5-item short form captures each of the main aspects.
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Family Health Scale
Developed to measure holistic concept of health for family unit, for use at population level and in clinical settings. Clinical cut-offs for poor, moderate, and excellent "family health", validated against individual risk of moderate or severe clinical depression. Long and short versions--long has 4 subscales, 32 items: family social and emotional health processes (connection, communication, etc. within family context), family healthy lifestyle (healthy behaviors, choices), family health resources (internal and external health resources), family external social supports (social capital, etc.). Short form is one score, 10 items. Psychometrically tested.