Pediatric Quality of Life
This curated set of instruments measure pediatric quality of life in generic as well as condition-specific contexts (e.g., pain, asthma). Each is described by condition/disease context, child age range, languages, and evidence of psychometric testing (e.g., validity and reliability). They can be compared by checking the “compare” button.
Showing 19–27 of 45 results
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Patient-Reported Outcomes Measurement Information System- Pediatric Global Health Measure Informant Only (PROMIS PGH-7)
Generic measure Measure domains: General health, quality of life, physical health, mental health, sad, fun with friends, parents listen to ideas Summary of development: TBD
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Patient-Reported Outcomes Measurement Information System- Pediatric Item Banks Short Form (PROMIS PIB SF)
Generic measure Measure domains: Mobility, upper extremity, peer relationships, depressive symptoms, anxiety, anger, pain interference, fatigue Summary of development: TBD
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Patient-Reported Outcomes Measurement Information System—Pediatric Item Banks (PROMIS PIB)
Generic measure Measure domains: Mobility, upper extremity, peer relationships, depressive symptoms, anxiety, anger, pain interference, fatigue Summary of development: TBD
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Patient-Reported Outcomes Measurement Information System—Pediatric Item Banks Computerized Adaptive Test (PROMIS PIB CAT)
Generic measure Measure domains: Mobility, upper extremity, peer relationships, depressive symptoms, anxiety, anger, pain interference, fatigue Summary of development: TBD
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Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)
Generic measure Measure domains: Health, mood/feelings, school/learning, helping at home, getting along with friends, getting along with family, play/free time, getting things done, love/affection, getting/buying things, place you live at, paying attention, energy level, feelings about yourself, global QoL Summary of development: TBD
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Pediatric Quality of Life Inventory (PedsQL)
Generic measure Measure domains: Functioning: physical; emotional; social; school Infant (<2 years) Version Domains: Functioning: physical; emotional; social; cognitive; physical symptoms Summary of development: TBD
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Personal Wellbeing Index- School Children (PWI-SC)
Generic measure Measure domains: Standard of living, health, life achievement, personal relationships, personal safety, community connectedness, future security, Global QoL Summary of development: TBD
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Personal Wellbeing Index- School Children 8 items (PWI-SC-8)
Generic measure Measure domains: Standard of living, health, life achievement, personal relationships, personal safety, community connectedness, future security, food satisfaction Summary of development: TBD
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Preschool Comprehensive Health Status Classification System (CHSCS-PS)
Generic measure Measure domains: Vision, Hearing, Speech, Mobility, Dexterity, Self-care, Emotion, Learning and Remembering, Thinking and Problem Solving, Pain, General Health and Behavior Summary of development: Studies aimed to develop a Multi-attribute Health Status Classification System (HSCS), to describe the functional health status of three-year old children, and to assess and report the overall health of preschool children (Saigal et al. 1998 & 2005). The HSCS-PS is a multidimensional measure of overall health, and existing systems such as HUI, Mark 2 & 3 were revised for application to a preschool population. It is important to note that health utility scales that are made in the econometric tradition, such as the CHSCS-PS, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful.