Instrument Repository
Showing 19–27 of 150 results
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Childhood Asthma Control Test (C-ACT)
Asthma-specific Measure domains: Symptom Control and Future Risk Summary of development: The Childhood Asthma Control Test (C-ACT) is modeled after the adult version of the ACT instrument for people 12 years of age and older (Juniper 1999). Childhood allergy and asthma experts came up with questions for the measure based on national guidelines for asthma control. Literature and previous childhood asthma measures were reviewed, and interviews with children and caregivers were conducted (Liu 2007). Parents/caregivers and children rank their symptoms differently, so this measure is designed for both kids and their parents to complete. Because younger children have a harder time with recall periods, children’s questions are asked in the present tense; caregivers answer based on a four-week recall period. This measure uses pictures of faces to represent answers like “All of the time” or “Very bad” to “None of the time” and “Very good” for younger children to more easily comprehend. Originally tested by children with asthma and their caregivers with 21 items – 8 questions for children, and 13 questions for caregivers – the C-ACT questionnaire used item selection to reduce the measure to 7 questions – 4 for children and 3 for caregivers (Liu 2007).
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Children’s Health Ratings Scale (CHRS)
Generic measure Measure domains: Current health quality, resistance to illness, health outlook, current illness state, current comparative health Summary of development: Maylath (1990) modified the RAND General Health Ratings Index to create the CHRS. The original 22 items were reduced to 17 items. There was mention of a parent form, which was not found except for a mention in a scoping review. There were several mentions of the measure in reviews, but we found very few articles describing or using this measure.
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Comprehensive Quality of Life Scale – School Version (ComQol-S5)
Generic measure Measure domains: Material well-being; Health; Productivity; Intimacy; Safety; Place in community; Emotional well-being (Optional: Spiritual) Summary of development: Based on previous versions of ComQol for adults and those with intellectual disabilities, Cummins (1997) developed a scale for school children aged 11-18. The scale development occurred in Australia. The scale has several editions with modifications in wording. The 5th edition has a manual. The full form also has several unscored and free text questions.
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Dartmouth Primary Care Cooperative Information Project (COOP) – Adolescent Version
Generic measure Measure domains: Physical fitness, emotional feelings, school work, social support, family communication, health habits Summary of development: The Dartmouth Primary Care Cooperative Information Project (COOP Project) was established in the 1980’s. It was a collaboration of public healthcare policy makers, physicians, and medical school faculty from Maine, New Hampshire, and Vermont, along with faculty at Dartmouth Medical School. The goal was to find ways to measure HRQoL in physicians’ offices (Nelson et al 1981a; Nelson et al 1981b). The measure was originally used in adult and geriatric populations. In 1994, Wasson created a version of the COOP measure for adolescents based on previous versions for adults. Here we only include testing of the adolescent version but there is other testing of the adult version in the literature.
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Diabetes Family Impact Scale (DFIS)
Designed to measure impact of childhood diabetes (type 1) on family life across dimensions of finances, work, well-being, and school (school impact is how disease affects child's school experience; others are effects on family). Developed for use in clinical settings and for program evaluation. Developed with input from providers and tested among families. Psychometrically tested.
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DISABKIDS Chronic Generic HRQOL (DCGM)
Generic measure Measure domains: Emotion, Independence, Physical, Social Inclusion, Social Exclusion, Medication Summary of development: The DISABKIDS project was based on previous groups to develop international measures for adults. The DISABKIDS project was a collaborative venture between seven European countries [Austria, France, Germany, Greece, the Netherlands, Sweden and the United Kingdom], and the goal was to develop an internationally valid instrument for children with chronic illnesses, as opposed to instruments which are developed in one country and then translated to other languages (Baars 2005). There were two parts of this project: first, developing the Chronic Generic HRQOL measure, which can be used for children with any chronic medical condition, then developing the disease-specific versions to be used in addition to the generic measure. The following condition-specific versions are available as an add-on to the generic measure: asthma [11 items], juvenile chronic arthritis [12 items], atopic dermatitis [12 items], diabetes mellitus [10 items], cerebral palsy [12 items], cystic fibrosis [10 items], and epilepsy [10 items] (Baars 2005). The original Chronic Generic questionnaire had 56 items (Petersen 2005) but was narrowed down to 37 by using factor analysis (Debensason 2004). There is also a 10-item short form with an optional additional 2 medication-related questions for a total of 12 (Muehlan 2010). Finally, there is a six-item version for younger children ages 4-7 in which they can self-report their answers using smiley faces (Chaplin 2008). Two versions of each measurement instrument is available: a child/adolescent self-report and a parent-proxy report. We include any article that has some results using the English versions; there are many articles with testing in other languages that are not included here. Four versions: DISABKIDS Chronic Generic HRQOL, DISABKIDS DCGM-37, DISABKIDS DCGM-10, DISABKIDS SMILEY VERSION
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DISABKIDS DCGM-37
Generic measure Measure domains: Emotion, Independence, Physical, Social Inclusion, Social Exclusion, Medication Summary of development: The DISABKIDS project was based on previous groups to develop international measures for adults. The DISABKIDS project was a collaborative venture between seven European countries [Austria, France, Germany, Greece, the Netherlands, Sweden and the United Kingdom], and the goal was to develop an internationally valid instrument for children with chronic illnesses, as opposed to instruments which are developed in one country and then translated to other languages (Baars 2005). There were two parts of this project: first, developing the Chronic Generic HRQOL measure, which can be used for children with any chronic medical condition, then developing the disease-specific versions to be used in addition to the generic measure. The following condition-specific versions are available as an add-on to the generic measure: asthma [11 items], juvenile chronic arthritis [12 items], atopic dermatitis [12 items], diabetes mellitus [10 items], cerebral palsy [12 items], cystic fibrosis [10 items], and epilepsy [10 items] (Baars 2005). The original Chronic Generic questionnaire had 56 items (Petersen 2005) but was narrowed down to 37 by using factor analysis (Debensason 2004). There is also a 10-item short form with an optional additional 2 medication-related questions for a total of 12 (Muehlan 2010). Finally, there is a six-item version for younger children ages 4-7 in which they can self-report their answers using smiley faces (Chaplin 2008). Two versions of each measurement instrument is available: a child/adolescent self-report and a parent-proxy report. We include any article that has some results using the English versions; there are many articles with testing in other languages that are not included here. Four versions: DISABKIDS Chronic Generic HRQOL, DISABKIDS DCGM-37, DISABKIDS DCGM-10, DISABKIDS SMILEY VERSION
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DISABKIDS SMILEY VERSION
Generic measure Measure domains: Emotion, Independence, Physical, Social Inclusion, Social Exclusion, Medication Summary of development: The DISABKIDS project was based on previous groups to develop international measures for adults. The DISABKIDS project was a collaborative venture between seven European countries [Austria, France, Germany, Greece, the Netherlands, Sweden and the United Kingdom], and the goal was to develop an internationally valid instrument for children with chronic illnesses, as opposed to instruments which are developed in one country and then translated to other languages (Baars 2005). There were two parts of this project: first, developing the Chronic Generic HRQOL measure, which can be used for children with any chronic medical condition, then developing the disease-specific versions to be used in addition to the generic measure. The following condition-specific versions are available as an add-on to the generic measure: asthma [11 items], juvenile chronic arthritis [12 items], atopic dermatitis [12 items], diabetes mellitus [10 items], cerebral palsy [12 items], cystic fibrosis [10 items], and epilepsy [10 items] (Baars 2005). The original Chronic Generic questionnaire had 56 items (Petersen 2005) but was narrowed down to 37 by using factor analysis (Debensason 2004). There is also a 10-item short form with an optional additional 2 medication-related questions for a total of 12 (Muehlan 2010). Finally, there is a six-item version for younger children ages 4-7 in which they can self-report their answers using smiley faces (Chaplin 2008). Two versions of each measurement instrument is available: a child/adolescent self-report and a parent-proxy report. We include any article that has some results using the English versions; there are many articles with testing in other languages that are not included here. Four versions: DISABKIDS Chronic Generic HRQOL, DISABKIDS DCGM-37, DISABKIDS DCGM-10, DISABKIDS SMILEY VERSION
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Duke Health Profile-adolescent version (DHP-A)
Generic measure Measure domains: Physical health; mental health; social health; general health; perceived health; self-esteem; anxiety; depression; pain; disability Summary of development: Duke Health Profile was initially created for adult population (Parkerson et al. 1990). The French Committee for Health Promotion adapted the original version, which is the Duke Health Profile- adults version that originated in the United States, for use among adolescents in France (Vo et al. 2005). The DHP-Adolescent version is the same as the adult version except for a change to one question about social well-being from “friends and family” to “family outside of the home and friends outside of school.” The original language for DHP-A is French with several evaluations of the French version that are not included in this review. We could not find a psychometric evaluation of the English version of the DHP-A.