Instrument Repository
Showing 10–18 of 150 results
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Asthma Control Test (ACT)
Asthma-specific Measure domains: Symptom Control and Use of Rescue Inhalers Summary of development: The Asthma Control Test (ACT) was developed for people ages 12 and older. An initial set of 22 questions was developed by clinicians. A sample of patients completed the questions and their asthma control was rated by a specialist. Stepwise logistic regression methods were used to identify the survey items with the greatest validity in discriminating between patients who differed in the specialist's rating of asthma control. The final questionnaire has 5 items (Nathan 2004). The original articles included participants as young as 12 and they were included in the analyses. There has been widespread use of this questionnaire since its development. However, we were unable to find any psychometric testing of the ACT exclusively in an adolescent sample.
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Asthma Sleep Disturbance Questionnaire (ASDQ)
Asthma-specific Measure domains: Disability, Nocturnal Symptoms, Daytime Symptoms, Chest Pain Summary of development: Four experienced clinicians were consulted about common symptoms experienced by pediatric asthma patients. From the feedback from the experts, 34 statements were developed, duplicate themes were removed, and 26 were left. Parents of children with asthma were recruited at medical providers’ offices to complete the questionnaire and provide feedback. After considering parents’ feedback, the number of items in the measure were reduced to 17. Further testing on the ASDQ was done with children’s parents recruited at pediatricians’ offices. 164 completed surveys were returned to the clinic. One statement “Taking his/her inhaler has interrupted my child’s life” was removed because 70% of parents answered “Not at all” to this statement. The data was analyzed, and four domains were identified: Disability, Nocturnal Symptoms, Daytime Symptoms and one question about Chest Pain.
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Asthma Therapy Assessment Questionnaire (ATAQ)
Asthma-specific Measure domains: Control; Attitude/behavior, Self-efficacy, Patient-provider communication Summary of development: Researchers used focus groups and experts to come up with the items for the measure. Parents of children with asthma were identified by a managed care organization through pharmacy claims and hospitalizations for asthma. The identified parents were mailed surveys and completed a follow-up telephone survey. Originally 20 items, it was reduced to 14, and there is a short version with 7 items.
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Autism Family Experience Questionnaire (AFEQ)
Developed to capture parent perspective of family experience when have child with autism. Developed through parent-generated input, specifically designed to assess impact of parent-child intervention. Measures family's experience across 4 domains: experience of being a parent; family life; child development, understanding, and social relationships; child symptoms (feelings and behavior). Validated and tested for responsiveness to change.
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Beach Center Family Quality of Life Survey
Developed to capture overall family quality of life for use in research and policy/programmatic contexts. Measures how family functions as a social unit and issues specific to families with children with disabilities. Includes 5 domains (subscales): family interaction, parenting, emotional well-being, physical/material well-being, and disability-related support. Development based on qualitative data from parents of children with disabilities; psychometrically tested. Testing to date only on families with children < 12 years.
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Brief Multidimensional Students’ Life Satisfaction Scale (BMSLSS)
Generic measure Measure domains: Family, Friends, School, Living Environment, Self Summary of development: TBD
*Multiple versions: Multidimensional Life Satisfaction Scale for children (MSLSS), Brief multidimensional students’ life satisfaction scale (BMSLSS), Multidimensional Students’ Life Satisfaction Scale—adolescent version (MSLSS-A) -
Child Health Survey for Asthma (CHSA) – Child, Teen & Caregiver Versions
Asthma-specific Measure domains: Physical health of the child, Child activity, Family activity, Child emotional health, and Family emotional health Summary of development: In 1992, the American Academy of Pediatrics began an effort to categorize children’s health related quality of life, the AAP Functional Outcomes Project (Williams & Miller 1992). One of the first condition-specific measures developed was for children with asthma by identifying domain areas most appropriate for asthmatic children and their parents. Literature and previous measures, including adult asthma measures, were reviewed, and focus groups were conducted with parents of asthmatic children and pediatricians. Cognitive interviews and pilot tests were done with 95 parents of asthmatic children to assess the pilot measure. The developers focused on designing a measure for parents of children aged 5-12. The CHSA has been replaced by the Asthma Pediatric Quality of Life (PedsQL) (Varni 2004).
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Child Health Utility 9D (CHU9D)
Generic measure Measure domains: Emotional function (worried, sad, annoyed), Physical function (tired, pain, sleep, daily routine), Schoolwork/homework/learning function, Social function (able to join in) Summary of development: The CHU9D was developed as a preference-based measure for HRQoL in children and adolescents. An unpublished paper written by Stevens in 2008 describes the conceptual framework and the process of developing the measurement instrument. Stevens (2009) reviewed previous pediatric HRQoL measures and then conducted several rounds of qualitative interviews with 7–11-year-old children to develop areas of concern, ranking of concerns, and test descriptive wording. This work found 11 dimensions of HRQoL and early questionnaires had 19 questions. Further work reduced the number of domains to 9 and the number of questions to 9. There are several tests of different scoring options. The measure website recommends using Stevens 2012 scoring using the standard gamble with adults in the UK. The website notes there is also a scoring algorithm developed using best/worst scaling with Australian adolescents (Ratcliffe 2011). It is important to note that health utility scales that are made in the econometric tradition, such as the CHU9D, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful.
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Child’s Health Self-concept Scale (CHSCS)
Generic measure Measure domains: Psychosocial; physical health; healthiness; values; energy (in 1984 article) And revised set of domains: Satisfaction with home life/family relations; emotional health; general physical health; peer relationships/friendships; sleeping patterns Summary of development: Hester (1984) surveyed children aged 6-13 using open ended questions to develop 12 categories of health. 58 items were initially created. After expert and child review as well as pilot testing using factor analyses, there were 45 items in 5 domains.