Instrument Repository
Showing 127–135 of 150 results
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SCORE-15
Developed for use in family therapy practices to assess family functioning. To be completed by all family members (age 12 and older; child version for 8-11 years: Child SCORE (Jewell et al., 2013)). Based on a longer version of 40 items deemed unwieldy for clinical use. Development included input from therapists and family members; psychometrically tested.
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SLSS- Students’ Life Satisfaction Scale
Generic-Specific Modules
Measure domains: No domain structure. Scale includes a range of questions on life satisfaction
Summary of development:
SLSS is a global measure that asks its target population the extent to which they agree or disagree with a series of general statements about their life, assessing perceived quality of life. SLSS uses items that are domain-free (e.g., my life is going well) versus domain-specific (e.g., my school life is going well). There are reduced and modified versions of this instrument (Huebner 1991).
A preliminary version of the SLSS consisted of 10 self-report items. The items were designed to be simple and easy to read, useful across a wide age and intellectual ability range. The revised version of the SLSS has 7 items.
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Spanish Family Quality of Life Scales
Designed to measure quality of life of families with one member with IDD. Separate version for family member < 18 and > 18 years of age. Each includes context-specific dimensions: for < 18: family climate, emotional stability, financial well-being, family adaptation, and family resources. For > 18: family climate, autonomy of person with IDD, financial well-being, family organization and functioning, family support for person with IDD. Developed based on existing family quality of life instruments, designed specifically for Spain. Psychometrically tested. (Child version 35 items; adult version 32 items).
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Student’s Life Satisfaction Scale (SLSS)
Generic measure Measure domains: No domain structure but includes a range of questions on life satisfaction Summary of development: TBD
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Survey of Family Environment
Developed to assess family functioning in clinical settings to identify families in need of support. Assesses family's internal and external environments, from perspective of one adult member considering the entire family unit. Items generated from expert opinion; psychometrically tested in large sample of Japanese families with children.
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TACQOL (TNO-AZL Child Quality of Life): Netherlands Organization for Applied Scientific Research Academic Medical Centre- Children’s Quality of Life Questionnaire, Informant Only: Parent-Form
Generic and Disease Specific Modules
Measure domains: Pain and symptoms; motor functioning; autonomy; cognitive functioning; social functioning; global positive emotional functioning; global negative emotional functioning
Summary of development:
The TACQOL-Child form and Parent form ask about children’s health status and their emotional response to health-related issues. There are two related questionnaires called the TNO-AZL Preschool Child Quality of Life Questionnaire and the TNO-AZL Questionnaire for Adult’s Health-Related Quality of Life. These measures were developed in the Netherlands in Dutch. They have been translated into 9 languages. All psychometric evaluations of the measures that we found were on the Dutch version.
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TACQOL (TNO-AZL Child Quality of Life): Netherlands Organization for Applied Scientific Research Academic Medical Centre- Children’s Quality of Life Questionnaire, Parent-Form, Child-Form, Parent Form + Child Form
Generic and Disease Specific Modules
Measure domains: Pain and symptoms; motor functioning; autonomy; cognitive functioning; social functioning; global positive emotional functioning; global negative emotional functioning
Summary of development:
The TACQOL-Child form and Parent form ask about children’s health status and their emotional response to health-related issues. There are two related questionnaires called the TNO-AZL Preschool Child Quality of Life Questionnaire and the TNO-AZL Questionnaire for Adult’s Health-Related Quality of Life. These measures were developed in the Netherlands in Dutch. They have been translated into 9 languages. All psychometric evaluations of the measures that we found were on the Dutch version.
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TANDI- Toddler and Infant Quality of Life. Updated/renamed as the EuroQol Toddler and Infant Populations (EQ-TIPS)
Generic-Specific Modules
Measure domains: Physical functioning; emotional functioning; role functioning; cognitive functioning; communication functioning
Summary of development:
The EuroQol Toddler and Infant Populations (EQ-TIPS) (formerly the TANDI) is an experimental measure based on the EQ-5D-Y proxy. The instrument was developed for children aged zero to three years and includes six dimensions of health which are used to make a single health utility score. It is important to note that health utility scales that are made in the econometric tradition, such as the EQ-5D, do not necessarily need psychometric testing such as internal consistency or structural validity. For these measures, other types of validity such as known groups validity and convergent validity may be useful.
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TAPQOL: TNO-AZL questionnaire for Preschool Children’s Health-Related Quality of Life
Generic-Specific Modules
Measure domains: Sleeping; appetite; lung problems; stomach problems; skin problems; motor functioning; problem behavior; social functioning; communication; positive mood; anxiety; liveliness
Summary of development:
The TNO-AZL- Preschool Children Quality of Life (TAPQOL) questionnaire was designed to measure parent's perceptions of health-related quality of life (HRQoL) in preschool children. The initial items were based on literature, psychological and clinical experience. The feasibility of this preliminary version of the TAPQOL questionnaire was evaluated in a group of parents of 1-5-year-old children. Several items were deleted or rephrased after this feasibility pilot. The number of items was reduced from 99 to 43 items in the final TAPQOL questionnaire (Fekkes 2000).
The original questionnaire was developed in Dutch and there is only one study we found testing the English version of the questionnaire. There are several studies of the Dutch version not included here.