YQoL-R (Youth Quality of Life; Research & Surveillance Versions)
Generic and Disease Specific Modules
Measure domains: YQoL-R: Sense of Self, Social Relationships, Culture and Community, and General Quality of Life
YQoL-S: Contextual; used primarily for policymakers
Summary of development: The development of the YQoL is described in three companion articles: Topolski 2001, Edwards 2002, and Patrick 2002. There are also disease-specific versions: Youth Quality of Life Instrument – Facial Differences module (YQOL-FD) (Patrick et al., 2007), (2) Youth Quality of Life Instrument – Weight module (YQOL-W) (Morales et al., 2011), and (3) Youth Quality of Life Instrument – Deafness and Hard of Hearing module (YQOL-DHH) (Patrick et al., 2011).
There are multiple available versions of the YQoL. The YQoL-R (Research), the YQoL-S (Surveillance), and the YQoL-SF (short form). There are several versions of each form with different numbers of items (even within the instrument’s website). We have summarize the most often used versions below.
Edwards TC, Huebner CE, Connell FA, Patrick DL. Adolescent quality of life, part I: conceptual and measurement model. J Adolesc. 2002;25(3):275–86. 146.
Patrick DL, Edwards TC, Topolski TD. Adolescent quality of life, part II: initial validation of a new instrument. J Adolesc. 2002;25(3):287–300
Additional information
| Number of Items | 42 |
|---|---|
| Time Frame/Recall Period | General |
| Measurement Type | Classical Test Theory |
| Overall Score | Yes |
| Sub scores/Subscales | Sense of Self, Social Relationships, Culture and Community, and General Quality of Life |
| Ages | 11-18 |
| Respondent | Self and Parent Proxy |
| Languages | Chinese, English, French, Others, Spanish |
| Development Used Experts | Edwards 2002; Patrick 2002 |
| Development Used Patient | Edwards 2002; Patrick 2002 |
| Structural Validity | Patrick 2002 |
| Internal Consistency | Patrick 2002 |
| Test-Retest Reliability | Patrick 2002 |
| Known Groups Validity | Patrick 2002 |
| Convergent Validity with Other Measures | Patrick 2002 |
| Measure Website | http://depts.washington.edu/seaqol/YQOL |
| Licensing | University of Washington |
| Fees | No fees, with permission form |